Welcome to IPOPI...

IPOPI, the International Patient Organisation for Primary Immunodeficiencies, is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide

Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders.

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  • Patients' family camp in Sweden
  • Global Leaders Meeting – London, UK
  • A patients and physicians awareness event in Belgium
  • 2nd PID Forum - EU Parliament
  • Family weekend in Wernigerode Germany
Improving awareness, access to early diagnosis and optimal treatments for PID patients worldwide

News

May 16, 2013
European Patients Rights Day
At the occasion of the European Patients Rights Day, the European Commission published a memo highlighting the added value that the EU brings to patients and outlining 10 concrete rights that the EU h
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May 7, 2013
Baxter Announces Phase III Alzheimer’s Trial Results
Earlier today, Baxter International Inc. announced that its Phase III clinical study of Immunoglobulin (IG) did not meet its co-primary endpoints of reducing cognitive decline and preserving functiona
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Publications

Dec 10, 2012
IPOPI Patient Information Leaflets - Diagnosis of PID, Moving from Child to Adult care and PID in adults
This second series of IPOPI patient information leaflets comprises helpful information and guidance for patients, their families and other interested stakeholders of the Primary Immunodeficiencies (PI
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Dec 6, 2012
IPOPI PID Patient Needs & Outlooks Survey
IPOPI PID Patient Needs & Outlooks Survey
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IPOPI Global Immunoglobulin list

This list is dedicated to the global PID community! It provides information about the supply of Immunoglobulin in some 100 countries. To let every patient or relative know about the situation in the different areas and countries of the world.

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The IPOPI Global Immunoglobulin List is currently being redesigned and updated. Come back soon to access the new improved version of our List!

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Our NMOs

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World PI Week