IPOPI, the International Patient Organisation for Primary Immunodeficiencies, is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide

Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders.

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Dec 20, 2016
European Member States approved on December 15 the proposal for a Rare Immunodeficiency, Autoinflammatory and Autoimmune (RITA) European Reference Network.
Nov 10, 2016
The New Zealand Health Minister, Jonathan Coleman, announced on 7 November 2016 the implementation of newborn screening for severe combined immunodeficiencies (SCID) by mid-2017.


Oct 21, 2016
IPOPI’s 2015 Review of Activities and Achievements is out and you can now read it online! We hope you will enjoy reading about one of the most important years for IPOPI yet.
Aug 29, 2016
IPOPI is pleased to announce the publication of the ‘PID Principles of Care Implementation Package’, a new key document designed specifically for our National Member Organisations (NMOs)

IPIC 2017

IPOPI Global Immunoglobulin list

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World PI Week

Biennial Meeting 2016