IPOPI, the International Patient Organisation for Primary Immunodeficiencies, is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide

Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders.

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  • New website page on SCID newborn screening
  • First IPIC, Estoril, Portugal, 400 participants
  • Dsai, Germany, central and regional leaders
  • PID patient's meeting in Bangkok
Visit our new website page on Severe Combined Immunodeficiency
(SCID Newborn screening)


Oct 12, 2015
IPOPI attended the 2nd European Reference Networks (ERNs) conference organised by the European Commission on 8-9 October 2015.
Oct 1, 2015
IPOPI in collaboration with its Italian National Member Organisation (AIP) and Italian experts in the field held a meeting on SCID newborn screening (NBS) at the Italian Senate in Rome.


Aug 17, 2015
IPOPI’s 2014 Review of Activities and Achievements is out and you can now read it online!
Apr 9, 2015
Over the last two years, IPOPI combined its efforts with a worldwide multi-disciplinary team of specialists to develop the “Primary Immunodeficiencies Principles of Care”.

IPIC 2015

IPOPI Global Immunoglobulin list

Website Sponsors

World PI Week

Biennial Meeting 2016