IPOPI, the International Patient Organisation for Primary Immunodeficiencies, is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide

Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders.

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  • First IPIC, Estoril, Portugal, 400 participants
  • Dsai, Germany, central and regional leaders
  • PID patient's meeting in Bangkok
  • Patients' family camp in Sweden
Improving awareness, access to early diagnosis and optimal treatments for PID patients worldwide


Sep 30, 2014
The Autumn 2014 edition of IPOPI's e-News is out and can be accessed here. Check out the new section NMO Focus with an article about the Portuguese NMO APDIP
Sep 23, 2014
IPOPI is now a member of Health First Europe (HFE). As a follow-up from the participation in HFE’s General Assembly IPOPI requested membership to this umbrella organisation.


Dec 20, 2013
The third series of IPOPI patient information leaflets comprises helpful information and guidance for patients, their families and other interested stakeholders.
Jul 4, 2013
The 2012 IPOPI Review of Activities and Achievements is now available online! In this report find out about IPOPI's activities and achievements during the past year.

Biennial Meeting 2014

IPOPI Global Immunoglobulin list

Website Sponsors

World PI Week

IPIC 2015