IPOPI, the International Patient Organisation for Primary Immunodeficiencies, is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide

Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders.

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  • New website page on SCID newborn screening
  • First IPIC, Estoril, Portugal, 400 participants
  • Dsai, Germany, central and regional leaders
  • PID patient's meeting in Bangkok
Visit our new website page on Severe Combined Immunodeficiency
(SCID Newborn screening)


May 7, 2015
GSK, Fondazione Telethon and Ospedale San Raffaele recently announced the submission of a marketing application to the European Medicines Agency for a gene therapy for ADA-SCID
Apr 21, 2015
The Council of Europe adopted an important Resolution about Therapies for Primary Immunodeficiencies. Very exciting news so close to this year's WPIW!


Apr 9, 2015
Over the last two years, IPOPI combined its efforts with a worldwide multi-disciplinary team of specialists to develop the “Primary Immunodeficiencies Principles of Care”.
Jan 16, 2015
A new series of IPOPI patient information leaflets has just been released! Five new interesting leaflets providing helpful information and guidance for patients and their families

IPIC 2015

IPOPI Global Immunoglobulin list

Website Sponsors

World PI Week

Biennial Meeting 2016