IPOPI, the International Patient Organisation for Primary Immunodeficiencies, is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide

Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders.

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  • Patients' family camp in Sweden
  • Global Leaders Meeting – London, UK
  • A patients and physicians awareness event in Belgium
  • 2nd PID Forum - EU Parliament
  • Family weekend in Wernigerode Germany
Improving awareness, access to early diagnosis and optimal treatments for PID patients worldwide


Apr 8, 2014
The IPIC2013 Report of Highlights is now available online! In this report read about key highlights from the first edition of IPOPI’s successful event attended by 400 participants.
Apr 3, 2014
A significant step towards the new Clinical Trials legislation was taken yesterday in the European decision-making process as it was formerly adopted by the Plenary of the European Parliament.


Dec 20, 2013
The third series of IPOPI patient information leaflets comprises helpful information and guidance for patients, their families and other interested stakeholders.
Jul 4, 2013
The 2012 IPOPI Review of Activities and Achievements is now available online! In this report find out about IPOPI's activities and achievements during the past year.

IPOPI Global Immunoglobulin list

Website Sponsors

Biennial Meeting 2014

IPIC 2015