Welcome to IPOPI...

IPOPI is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide

Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders.

Patients' family camp in Sweden
Global Leaders Meeting – London, UK
A patients and physicians awareness event in Belgium
2nd PID Forum - EU Parliament
Family weekend in Wernigerode Germany

Improving awareness, access to early diagnosis and optimal treatments for PID patients worldwide

News

Jan 19, 2012

European Commission Work Plan 2nd Health Programme

The European Commission published its work plan for 2012 for the second programme of Community action in the field of health. The work plan sets out the activities to be co-financed from the work plan

Jan 16, 2012

PLUS Dublin Consensus Meeting 2012

PLUS, the Plaftorm of Plasma Protein Users, organised its 3rd Stakeholders consensus meeting in Dublin, Ireland on 12-13 January.

Publications

Jan 19, 2012

IPOPI Information Leaflets (Treatment, General Care and Information to Schools)

IPOPI has published three information leaflets comprising helpful information and guidance for patients, their families and schools as well as other interested stakeholders.

Dec 7, 2011

Health Technology Assessments (HTAs) and Rare Diseases Therapies

IPOPI’s recently released a co-edited issue of Pharmaceuticals Policy and Law in collaboration with Professor Jose-Luis Valverde (University of Granada, Spain) looking at Health Technology Assessments

IPOPI Global Immunoglobulin list

This list is dedicated to the global PID community! It provides information about the supply of Immunoglobulin in some 100 countries. To let every patient or relative know about the situation in the different areas and countries of the world.

Website Sponsors

Welcome to IPOPI...

News

Publications

IPOPI Global Immunoglobulin list

Our NMOs

World PI Week