 |
 |
 |
 |
||||||||||
|
|||||||||||
|
|
||||||||||||||||
|
|||||||||||||||||
|
|||||||||||||||||
|
No advertising or solicitation is permitted on the forums. We would like to point out that the purpose of our forums is for the exchange of relevant experiences and the friendly support to other people who share our immunodeficiencies. The forums do not aim to provide detailed medical advice, as we are not able to verify the integrity of the views made through the forums. Members of National Member Organisations (NMO) who wish to ask medical questions may do so via their NMO via telephone or e-mail and they will be helped personally and privately (for contact possibilities see: About IPOPI/Member Orgs).
General Discussion : IPOPI Forums
Please add to our discussion forum. (Please do not use the forum for advertising.)
Hereditary ?????????
Posted by: Ray (---.proxy.aol.com)
Date: July 22, 2005 02:06PM having been DX with hypogammagoublinanamia last year being deficient in subclass 1 my sibling had there blood work done and it came back with almost the exact numbers there Dr. said well that explains alot of your problems. I am just wondering is there any other folks out there that have this running in there family's?? Re: Hereditary ?????????
Posted by: sue (---.dynamic.mts.net)
Date: July 26, 2005 03:19AM Hello Ray, I was diagnosed with a PID one year ago at 46 years of age. I was advised to inform immediate family members to have the initial bloodwork for PID. As it turns out, my father, who is now 80 years old was recently diagnosed. My sister had her preliminary bloodwork done, and will be referred to an immunologist as her IgG level was borderline low. The immunologist indicated that she may be low in subclasses. There are many more family members that require testing. It seems as though the PID in our family is hereditary. Hope that this has been of some assistance. Sue Re: Hereditary ?????????
Posted by: Rhonda (---.proxy.aol.com)
Date: July 29, 2005 04:08AM I was diagnosed 12 years ago with Igm Deficiency. My son was diagnosed at age 5. Last year Iwas diagnosed with CVID, my son in January and my mom in March. The infectious disease doctor gave my son the diagnosid of genetic immune deficiency. Hope this helps Rhonda also go to www.primaryimmune.org Re: Hereditary ?????????
Posted by: Louise (61.68.107.---)
Date: September 03, 2005 08:04AM Hello Ray My two sons (ages 4 and 2) have been diagnosed with Bruton's x-linked agammaglobulanemia. It is genetic and past on by me. The have Intragram every 4 weeks and are doing very well. Cheers Louise Re: Hereditary ?????????
Posted by: BCAClark (---.columbus.res.rr.com)
Date: October 02, 2005 06:05PM Ray, I was diagnosed with CVID 4 years ago and as far as i can tell im the "selected" one in my family. My parents and sister have been tested and are apparently just fine. Not sure how or if it will affect my kids but we will see. Andy Re: Hereditary ?????????
Posted by: jessica87au (---.vic.bigpond.net.au)
Date: November 11, 2005 04:25AM My uncle has agammaglobulinemia. My mother had IgA deficiency. My mother was actually tested at birth for this because of her brother and all her results came back negative. She was diagnosed at 18 months with the IgA, as she was going to be the doner for a bone marrow transplant for her brother, and tests came back that she had the IgA. Genetic or spontaneous? I've been tested for all deficiencies at 1 year and they came back negative. However some things point to myself actually having some form of deficiency. Chronic tonsillitis, chronic ear infections, constant strep throat, bronchitis, lung infections... Re: Hereditary ?????????
Posted by: LoriG (---.dynamic.eatel.net)
Date: January 02, 2006 02:52AM My mother and father were never tested. My brothers and half-sister have not been tested. My two children, however, were tested; both have IgA deficiency. I have CVID. Re: Hereditary ?????????
Posted by: Dana Samuelson (---.dsl.rcsntx.sbcglobal.net)
Date: August 23, 2008 03:33PM August 23, 2008
Yes, I think they discuss the genes in some paper on the web. I think CVID is harder to find a relative who has it, but in my case, both my mother and I have it, and were diagnosed around the same time. I think my father also may have had a recessive gene, too. My mother and I both take IVIG, foing on two years now. My doctor said I was born with it, and she probably was, too. We both had infections all our life. Hope this helps. Dana Sorry, only registered users may post in this forum.
|
 |
|
 |
