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No advertising or solicitation is permitted on the forums. We would like to point out that the purpose of our forums is for the exchange of relevant experiences and the friendly support to other people who share our immunodeficiencies. The forums do not aim to provide detailed medical advice, as we are not able to verify the integrity of the views made through the forums. Members of National Member Organisations (NMO) who wish to ask medical questions may do so via their NMO via telephone or e-mail and they will be helped personally and privately (for contact possibilities see: About IPOPI/Member Orgs).
General Discussion : IPOPI Forums
Please add to our discussion forum. (Please do not use the forum for advertising.)
CIDP symptoms
Posted by: colleenmd (---.ed.shawcable.net)
Date: September 18, 2005 04:10PM I think my son has been misdiagnosed and was wondering what some of the uncommon symptoms of CIDP and what some of your tests revealed that led them to the diagnosis of CIDP. Things like spinal tap, MRI, Blood. Symptoms such as hearing loss, drooping eyelids, tummy pains. Has anyone been diagnosed with a mito disese first? Colleen Colleen Re: CIDP symptoms
Posted by: LKT5031 (---.proxy.aol.com)
Date: January 12, 2006 04:17PM My symptons started with the loss of movement in my legs. I was first diagnosed with MS and treated with IV steroids. It took 5 years and 5 Neurologist to get a correct diagnosis. I have more mobility after receiving IVIG therapy. Don't take the word of just 1 doctor about diagnoses, get several opinions. One doctor said it was in my head. Sorry, only registered users may post in this forum.
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