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No advertising or solicitation is permitted on the forums. We would like to point out that the purpose of our forums is for the exchange of relevant experiences and the friendly support to other people who share our immunodeficiencies. The forums do not aim to provide detailed medical advice, as we are not able to verify the integrity of the views made through the forums. Members of National Member Organisations (NMO) who wish to ask medical questions may do so via their NMO via telephone or e-mail and they will be helped personally and privately (for contact possibilities see: About IPOPI/Member Orgs).
General Discussion : IPOPI Forums
Please add to our discussion forum. (Please do not use the forum for advertising.)
CVID & IVIG INFORMATION NEEDED
Posted by: Susan (---.home1.cgocable.net)
Date: January 15, 2006 12:21AM I have just been diagnosed with CVID recently and have not yet had my first IVIG, I know very little about the illness or the treatment other than what I have read on the net in the medical reports, and it all seems quite scary. I would really like to have some information from others who actually have experienced the treatments and are familiar with the illness. thanks so much Susan Re: CVID & IVIG INFORMATION NEEDED
Posted by: Sue (---.ok.ok.cox.net)
Date: January 23, 2006 04:55AM Hi, I have been diagnosed with CVID for ten years and have had the systoms all my life. I have good doctors and know my body well. I have gone low tech and do not do the infusions although the doctors want me too. Acupuncture, high vitamin C, antibotics when needed. I try to keep low stress. All the best, Susan Re: CVID & IVIG INFORMATION NEEDED
Posted by: Susan (---.home1.cgocable.net)
Date: January 28, 2006 12:20AM Thanks for replying to my email, I will look into what you have told me and ask the specialist I am going to see in the next week or so. The only concern I have is that I have been on antibiotics for cronic sinisitis for over a year now. If I can get beyond this and not have to have IVIG that would be great!! I will definately look into it and thank you so much. With kindest regards, Susan Sorry, only registered users may post in this forum.
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