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No advertising or solicitation is permitted on the forums. We would like to point out that the purpose of our forums is for the exchange of relevant experiences and the friendly support to other people who share our immunodeficiencies. The forums do not aim to provide detailed medical advice, as we are not able to verify the integrity of the views made through the forums. Members of National Member Organisations (NMO) who wish to ask medical questions may do so via their NMO via telephone or e-mail and they will be helped personally and privately (for contact possibilities see: About IPOPI/Member Orgs).
General Discussion : IPOPI Forums
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newly diagnosed
Posted by: sshine (---.pn.at.cox.net)
Date: January 31, 2006 03:20PM i have just been diagnosed with CVID but now they tell me i'm not a canidate for treatment despite all my symptoms, because my levels aren't low enough yet. I have low levels of iga, igg and igm. What is low enough? What are good levels vs. bad levels? Re: newly diagnosed
Posted by: Anonymous User (---.twcny.res.rr.com)
Date: February 04, 2006 01:50AM My understanding is that whether or not IVIG will help you depends more on your antibody response than on how low your levels are. My levels weren't as low as a lot of people get, but I had a very poor antibody response to the pneumovax and that meant I could benefit from IVIG. Have they done any antibody tests? They would draw your blood to check antibody levles, administer the vaccine (I think usually pneumovax and/or tetanus, but I may be wrong about that) and then a month later they draw more blood and see if you mounted an antibody response. Re: newly diagnosed
Posted by: adschwing (---.mivlmd.cablespeed.com)
Date: March 22, 2006 05:13PM My son is nine and was just diagnosed they jsut gave him the pneumoccocal vaccine to see if he makes antibodies. But the doc did say even if he does make the antibodies we may still consider IVIG due to his chronic fatique. He has a low total IgG with a deficiency in only subclass 1. His total IgG was 401. allie Re: newly diagnosed
Posted by: adschwing (---.mivlmd.cablespeed.com)
Date: March 22, 2006 05:14PM Oh yea I forgot to mention the doc said that we were lucky that his Iga was not low because sometimes people with that do not tolerate the IVIG. I believe IVIG therapy is only good to IgG levels??? allie Re: newly diagnosed
Posted by: mom3 (---.il-chicago0.sa.earthlink.net)
Date: July 26, 2006 01:49AM hello my daughter has low igg2 and igg4 she is 4yr but was diagnosed at age 3.the dr said it is nothing to worry about and she should out grow it.i took her to a imunologist that said the same thing but ive been reading up on it and they say children should be tested alot to see if there levels are changingand my doc doesnt do that to my daughter.she still gets alot of strep throught,broncitis and she had the flu really bad last year.im scared to send her to school next year because of her condition.is anyone out there that has achild with the same thing that can give me advise?if there is please do Sorry, only registered users may post in this forum.
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