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No advertising or solicitation is permitted on the forums. We would like to point out that the purpose of our forums is for the exchange of relevant experiences and the friendly support to other people who share our immunodeficiencies. The forums do not aim to provide detailed medical advice, as we are not able to verify the integrity of the views made through the forums. Members of National Member Organisations (NMO) who wish to ask medical questions may do so via their NMO via telephone or e-mail and they will be helped personally and privately (for contact possibilities see: About IPOPI/Member Orgs).
General Discussion : IPOPI Forums
Please add to our discussion forum. (Please do not use the forum for advertising.)
CVID and IVIG Start . . .
Posted by: Brant (---.sd.sd.cox.net)
Date: March 24, 2006 02:39AM I am 25 years old and I have been healthy most of my life and never had worry about anything major in my health that was going to affect me in any way. I have just found out that I have CVID two weeks but I have been in pain for about the last year and just now found out what has been causing it after 4 doctors, 3 massage therapists and 3 chiropractors. I didn't thi9nk that it would ever be this hard and this dramatic or even as serious as it has come to be. I just started my IVIG treatment on tuesday and I am trying my best to find as many articles on how everything, how it can turn for the better or for the wrost and how all of this and the treatment will affect my lifestyle and future. If someone can help me out on resources, tips or even ideas of how to cope with all of this, I would appreciate any type of feedback. Re: CVID and IVIG Start . . .
Posted by: adschwing (---.mivlmd.cablespeed.com)
Date: March 29, 2006 10:56PM Hey did you have neck pain? This is my sons bigggest complaint. Are you normally pretty fatigued. I am new to this forum also and many people have left me very informative posts. Search throiugh some of them and find the websites they refer you to. They are very informative!! Read the post that states to all newly diagnosed allie Re: CVID and IVIG Start . . .
Posted by: charmckay (---.mfd.clearwire-dns.net)
Date: June 18, 2006 08:34AM I would like to know how you are feeling after your first treatment? My husband has recently been diagnosed with CVID. I feel for you. It took Dr.s alomst 4 years and tons and tons of testing to finally diagnose my husband. He is always in pain from head to toe. He goes in on Monday for his 1st treatment and is not sure what to expect. Re: CVID and IVIG Start . . .
Posted by: zephren_@hotmail.com (---.dsl.rcsntx.swbell.net)
Date: July 02, 2006 10:18PM Well, how did his treatment go? Sorry, only registered users may post in this forum.
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