My son has just had his first treatment of IVIG. He is 1 yr old and the treatment was administered 3 days ago.

He has been diagnosed with XLA. He is obviously struggling with an infection at the moment as his lymphnode on the back of his neck is very swollen and red (purple!). He is receiving oral flucox for this infection. Last week he was receiving IV anitbiotics for the infection.

Last night when he came in to us (his neck was hurting), we noticed he has a rash across his body. The rash appears as small pin-prick marks.

Could this rash be as a result of the IVIG or is it likely to be a reaction to the flucox? He has had flucox before when he had an infection but I cannot recall this effect.

On a side note, we have noticed with flucox that his tongue goes black! It looks like he has been eating black-jack sweets.

Many thanks

steve

Shelbie gets IVIG every four weeks. She is also immune deficient. She gets pre-meds to prevent reaction to gamma. She gets a strong does of motrin and phenagran [sp?]. Her reaction is bad....migraine headache, can't see, nausea, can't walk. She takes the pre-meds every time and has no reaction. She has had the surgery for gurd and you are not supposed to throw up, it may "pop" the surgery. Her pre-meds prevent the throwing up. She is 13 and has been getting gamma since she was 6. She knows she needs this as she hasn't any immunity to anything. With the pre-meds she has no qualms about the infusion. Even gets them on weekends now, no missing school.