I am 49 years old and was diagnosed with IGG deficiencies in subclasses 1 and 3 in 1998. I also have hyper IGM which apparently is unusual to have both these conditions. Illness has really dominated my life over the last 12 years or so. I started intravenous gamma globulin 3 years ago but still felt unwell so am currently having a 6 month trial without it. I was okay for 4 months but have now come down with a viral infection! It bothers me that it took until I was 49 to be diagonosed even though I started gettting bronchitis regularly in my teens but it wasn't till I came to Australia to live (from England) that my condition was investigated and the immune problem was discovered. In England all my visits to my Dr just ended in a prescription or being told that I was stressed!!!!! My complaints were never investigated or taken seriously. I now sometimes worry that I have some permanent damage to the airways due to persistent infections. Is there anyone else out there who has IGG subclass deficiencies and if so, what kind of symptoms and problems do you have?

I am 50 years old and was diagnosed with IGG subclass 2 and 3 deficiency last January. Like you I was ill with repeated lung/respiratoy infections for at least the last 15 years. It wasn't until I went into the Drs. offices screaming that there was something wrong with my immune system that I was finally sent to an immunologist and tested.

I have been getting infusions every three weeks since February and feel much better.
I haven't had an infection since then.

I also have sjogren's syndrome (an autoimmune disease that isn't supposed to coincide with IGG deficiency), asthma, COPD,
and fibromyalgia.

I have applied for disability because I can no longer work. I feel a lot better than I did a year ago, and can function if I can do it at my own pace with lots of rest breaks.

Rather than being angry about suffering for so many years without help, I try to be greatful that I have received help now. I only have a certain amount of energy to spend every day, and I try to reserve it for things that are positive and productive. That includes my thinking.

My immunologist has told me that there is no doubt that my lungs are permanently damaged from years of infections. I think that a lot of American doctors don't look into these illnesses because the IVIG treatment is so expensive that many insurance companies don't cover it. (I live in New York State.)

I would like to communicate with you via email. Please feel free to email me at
mwhite3249@aol.com.

Please let me know how you make out without the infusions.

Keep the faith,
Melissa

You need to consider useing colostrum.

www.cidpusa.org/diet

I.K

I am in need of help. My son is very ill. He was in a study as a child and received gamma globulin. We moved and He then went off to college etc and has gone downhill since then. He hasn't gotten any gamma for many years. I need help navigating the insurance etc. Do you have any suggestons?

I was diagnosed with IgG subclass deficiencies last year. It was considered to be CFS from 1998 until that time. I live in Australia.

I have been having IM Ig for almost a year, with some increase in energy levels, but still getting regular infections. I am about to start IV Ig therapy.

My symptoms are sinus infections every 4-6 weeks, fatigue, mild anxiety, mild insomnia, muscle pain in my legs, sensitivity to noise and light, nausea. I also have many symptoms of Sjogren's Syndrome, but tests so far don't confirm that I have it.

Anne