 |
 |
 |
 |
||||||||||
|
|||||||||||
|
|
||||||||||||||||
|
|||||||||||||||||
|
|||||||||||||||||
|
No advertising or solicitation is permitted on the forums. We would like to point out that the purpose of our forums is for the exchange of relevant experiences and the friendly support to other people who share our immunodeficiencies. The forums do not aim to provide detailed medical advice, as we are not able to verify the integrity of the views made through the forums. Members of National Member Organisations (NMO) who wish to ask medical questions may do so via their NMO via telephone or e-mail and they will be helped personally and privately (for contact possibilities see: About IPOPI/Member Orgs).
Young Adults : IPOPI Forums
Do you have primary immune deficiency and would like to talk to other people your age? Or do you have a friend with a primary immune deficiency and want to understand more about it? Then please use our newest forum to make new friends around the world.
I don't have a IgA and IgG.
Posted by: Susete Alves Carvalho (---.206.39-62.rev.gaoland.net)
Date: November 07, 2004 01:50PM Hello, I have some difficulties in English, I am not very gifted but I work this. Excuse me for the syntax or grammatical mistakes! I'm french, since my birth I have a hypogammaglobulinemia (I don't have IgG) when I have 12 years They informe me that I don't have IgA both. I have a lot of problems with my healt, it's not stable. In this times I have musculars problems. Per moment I do not have any more a force to write or walk. I have articular, muscular pains and some times of cramps. They don't know the origin of all that. I am tired of this life, it is not easy! I will like to know other people who have this disease. Re: I don't have a IgA and IgG.
Posted by: Alisa (---.hr.hr.cox.net)
Date: December 05, 2004 11:18PM i am igg deficient also. I get a lot of muscular pains. A lot of times it hurts too much to move,but i have to because of school and other things i do. I am sorry to hear about the pain you are going through but i do understand. Take care Re: I don't have a IgA and IgG.
Posted by: Susete Alves (---.210.39-62.rev.gaoland.net)
Date: March 08, 2005 08:09PM Thanks for your answer. But I am sorry for my long silence. I'm happy for you answer, I don't know other peaople with this deases. Is not easy to live with muscular pains, i understand you. I'm student in bioinformatics, and some times is hard to follow my studies. Excuse me for my bad english ! Re: I don't have a IgA and IgG.
Posted by: FuzzyBunny95531 (---.dhcp.crsn.ca.charter.com)
Date: April 28, 2006 12:20AM Hi I too have low/no IgA and IgG as well as IgM. I had a problem with swelling/pain of the joints but I have read that its a part of CVID. I have had three IVIG's over last few mothes and that has helped me a lot. Have you been getting treatment for your IgA and IgG deficiancies? If not then you might want to talk with your Dr. about getting started on IVIG.
I still dragg a lot and have my "bad" days but it's not nearly as bad as it was before I got treatments. Re: I don't have a IgA and IgG.
Posted by: lolly (---.dsl.elpstx.swbell.net)
Date: September 24, 2006 01:18AM I am 35 and have just been diagnosed with hypogamma. They had to run my test twice because my IGg, IGa, IGm was so low they thought something had gone wrong at the lab. I am waiting for my insurance to approve the IVIG. I am scared and am wondering how much better am I going to feel after I start receiving the IVIG. I would love to talk to someone. I have a lot of questions. Please e-mail me. Re: I don't have a IgA and IgG.
Posted by: everetra (---.hsd1.ma.comcast.net)
Date: April 15, 2007 01:39AM Have your doctor check your blood levels for vitamin D, Calcium. Magnesium, hemocrit. I had a severe vitamin D deficiency and could barely walk. If you are getting the bad pains during infusion, switch to a different manufacturer or have your trough levels measured before your infusion. The IgG level should be more than 300. Good luck...I have been fighting this for over 15 years. Sorry, only registered users may post in this forum.
|
 |
|
 |
