Hi,
My name is Christel, 23 years old and I live in the Netherlands. Six years ago the diagnosis CVID was made -type hypogam. I feel relieved I finally found this forum, seeing and knowing now that I am definetely not the only one with this disease. I am looking for people my age to email or write about their experiences with CVID.
Love to year from you soon.

Chris

hello,
my name is melissa. i live in GA. im not quiet 23 but im almost 18(this jan.) and ive recently been diagnosed with CVI(last december to be exact). i really hope i can find someone to talk to who actually understands what im going through. i dont know about you but searched several sites looking for people just like me who i can chat with and i too feel releived to have FINALLY found one. my family supports my 100% as well as my boyfriend but at the same time they have NO clue what it feels like to be SOOO tired and fatigued that you have to fight to keep your head up or even to move. sorry if i seem random. my thoughts are everywhere right now. i cant wait to keep talking with you! please write back. your my first message so im not sure how this thing works yet.my e:mail is spedmed29@yahoo.com if you need that. have a great day! -melissa

Hi ladies, My name is Tiffany I am 24 and I have a 4-year-old child. I have been Rx with CVID for over a year now but only started getting treatments in Feb. Life has been a lot better since I started getting treatments but I'm still not 100%. I still get very sleepy. I have to start getting up before 8am next spring to bring my son to school. Totaly not looking forward to that. I have a hard time wakeing up to an alarm five days a week. I have to sleep in atleast 4 out of 7 or I'm just dragging. I'm really looking forward to getting to know others who have CVID. Please feel free to email me at FuzzyBunny95531@yahoo.com.

Hi, my name is Stephanie and i get IVIG, i was diagnosed with CVID 4-5 years ago, actually the technical name is Dysgammaglobulinemia. Just thoughty i would reply back...if ya have any questions i may be of some help..or just wanna chat i know how it feels to feel alone with this disease!!

Hi there kaz here,
Chrissie feel free 2 email me any time at kazamuz@yahoo.com.au
Please don't feel alone we all need a shoulder some time.I think we all have the the same struggles and just being able to express it to someone who's going through the same thing can make a huge difference.
I wish u goodluck 4 now hope 2 here from u soon.
kaz

Hi,
I am 25 year old man from Central Europe. It is very good to find anyone strugling with similar problems. I get IVIG for about 8 years with quite bad experiences.

You are not alone. I have been battling this for 15 years and have a fairly successful career and family life. The secret is to eat healthy, have a positive attitude and get the proper amount of IVIG at the right time. I get 35 grams every 2 weeks! I do not have any IgG or IgA. Feel free to e-mail e at bob.everett@eg-engineers.com

hello everyone.

My husband has CVID and I am looking to find people to talk to about it. He has chosen not to treat it and I am having a hard time dealing with this. Especially since he talks about how much pain he is in and how he doesn't feel good all the time. Any advice would be appreciated. This is very hard on me and our children. I have done alot of research and I feel for each of you that has immune diseases.