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No advertising or solicitation is permitted on the forums. We would like to point out that the purpose of our forums is for the exchange of relevant experiences and the friendly support to other people who share our immunodeficiencies. The forums do not aim to provide detailed medical advice, as we are not able to verify the integrity of the views made through the forums. Members of National Member Organisations (NMO) who wish to ask medical questions may do so via their NMO via telephone or e-mail and they will be helped personally and privately (for contact possibilities see: About IPOPI/Member Orgs).
Young Adults : IPOPI Forums
Do you have primary immune deficiency and would like to talk to other people your age? Or do you have a friend with a primary immune deficiency and want to understand more about it? Then please use our newest forum to make new friends around the world.
new and gettin there
Posted by: kazamuz (---.dial-lns4.vic.chariot.net.au)
Date: September 26, 2006 03:04PM Hi i'm kaz a 33 yo mum 2 girls in their teens I've just been diagnosed with cvid. I don't know about u guys and gals but I can feel fine early in the day but in the afternoons I hit an all time low!!! I finally told told my mum in her 50's the results(she was an RN) and she kind of freaked out on me totally changing the subject. Guess it was a bit of a shock considering my brother has MS and my dad has diabetes along with alchiemers.
I had my first treatments on thurs and fri last week and half the time I feel like I've accepted the diagnoses then I go into denial/Way out there yeh!!! Hope I can chat 2 some of u soon Kaz Re: new and gettin there
Posted by: everetra (---.hsd1.ma.comcast.net)
Date: April 15, 2007 01:48AM Hi Kaz...I was diagnosed with CVID 15 years ago and might be able to shed some light and perhaps help. Please feel free to e-mail me at bob.everett@eg-engineers.com Sorry, only registered users may post in this forum.
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