IPOPI, the International Patient Organisation for Primary Immunodeficiencies, is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide

Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders.

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News

Jun 15, 2016
GlaxoSmithKline (GSK), Fondazione Telethon and Ospedale San Raffaele (OSR) recently announced that the European Commission approved Strimvelis, the first ex-vivo stem cell gene therapy for ADA-SCID
Jun 3, 2016
Shire today completed its previously announced combination with Baxalta.

Publications

Apr 29, 2016
IPOPI is glad to release a new series of patient information leaflets during this World Primary Immunodeficiencies Week!
Aug 17, 2015
IPOPI’s 2014 Review of Activities and Achievements is out and you can now read it online!

IPIC 2017

IPOPI Global Immunoglobulin list

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World PI Week

Biennial Meeting 2016