Jun 16, 2011

IPOPI EU PID Forum SCID Newborn Screening

IPOPI organised its first EU PID Forum at the European Parliament in Brussels on Wednesday 15 June. The forum was hosted by Glenis Willmott (S&D, UK), Member of the European Parliament, and focused on SCID Newborn Screening . Participants in the workshop included IPOPI representatives and other key opinion leaders on SCID newborn screening, such as leading physicians, researchers and industry representatives. The meeting yielded very successful outcomes. The key recommendation of the workshop is that the European Union and its Member States should consider SCID a paediatric emergency and introduce SCID in the obligatory list of diseases newborns are screened for on a routine basis. Several concrete lines of action were identified. A more detailed report of the meeting's outcomes and other key documents will be posted shortly on the website (now available here). An article on the meeting is also available on Glenis Willmott's website here.   

 

 

                              



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Contact
Executive Director: Johan Prevot
Email: johan@ipopi.org
Tel/Fax: +351 21 407 5720
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Firside Main Road Downderry
Cornwall PL11 3LE
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Tel: +44 1503 250 668
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E-mail: info@ipopi.org
IPOPI is a charity registered in the UK.
Registration No. 1058005