Nov 21, 2011

Call for SCID Newborn Screening in the UK

As part of its partnership with Member of the European Parliament (MEP) Glenis Willmott, IPOPI participated in a meeting in the East Midlands, United Kingdom, on the need for implementation of SCID newborn screening. During the meeting, which was also attended by Prof Bobby Gaspar and families from the East Midlands who were affected by SCID and followed on IPOPI's campaign to introduce SCID newborn Screening in the European Union, Mrs Willmott re-emphasized her support to the swift implementation of the screening test. She stressed that SCID "(...)is life threatening and a simple procedure at birth can save lives. The cost of diagnosing the disease is negligible when compared to the cost of treatment if undiagnosed, and the child becoming very ill. Hopefully, together we can pave the way for all children to be screened at birth." The meeting was reported in the media, including by the BBC, see here.

World PI Week
IPOPI would be grateful for any support to the important work for primary immunodeficiencies.

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Executive Director: Johan Prevot
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