Nov 23, 2011

First PID Patient Meeting in Russia

IPOPI was pleased to support the first national Russian PID patient meeting in Russia on November 17th in Moscow. The meeting was very successful and attended by numerous patients, doctors and other stakeholders from all regions if the country, and led to a resolution seeking to influence national policy and enhance the diagnosis and care of people living with a PID in Russia. IPOPI called for "the development of a national programme in Russia aimed at raising the awareness of PIDs and improving the conditions in terms of diagnosis and access to appropriate treatment for people living with a PID in Russia. This is in line with the increasing recognition of the importance of diagnosis and treatment for people living with rare diseases in many regions of the world as well as the global call to action launched during the last World Primary Immunodeficiency Week". IPOPI looks forward to welcome Russia among its network of NMOs in the short term future.

World PI Week
IPOPI would be grateful for any support to the important work for primary immunodeficiencies.

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Executive Director: Johan Prevot
Tel/Fax: +351 21 407 5720
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