Dec 9, 2011

IPOPI holds 2nd PID Forum at EU Parliament

On December 6, 2011, IPOPI held its second PID Forum at the European Parliament on Health Technology Assessments (HTAs) and Primary Immunodeficiencies. The event was very successful and was hosted by Member of the European Parliament (MEP) Glenis Willmott (UK, PES). It was attended by numerous stakeholders including patient, physician and academia representatives, industry experts, as well as by 9 MEPs from different political parties. Presentations were given by Dr Teresa Espanol (Chair, IPOPI Medical Advisory Panel) Brian O'Mahony (President, European Haemophilia Consortium) and Johan Prevot (Executive Director, IPOPI). A productive and lively discussion ensued and led to an agreement on several action steps including the adoption of a set of EU recommendations highlighting the need to take the patients’ and physician's viewpoints into consideration when performing these assessments on life saving therapies or diagnostic tools. A full report of the meeting's outcomes and the final set of recommendations will be available shortly on the IPOPI website!



World PI Week
IPOPI would be grateful for any support to the important work for primary immunodeficiencies.

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Executive Director: Johan Prevot
Tel/Fax: +351 21 407 5720
UK office
Firside Main Road Downderry
Cornwall PL11 3LE
United Kingdom

Tel: +44 1503 250 668
Fax: +44 1503 250 961
IPOPI is a charity registered in the UK.
Registration No. 1058005