Feb 28, 2013

Rare diseases day – today!

Rare diseases without borders is the slogan of the 2013 International Rare Diseases Day celebrated today. The main objective of Rare Disease Day is to raise awareness about rare diseases, the challenges encountered by those affected by these disorders, and the inequalities that rare disease patients face every day.
The campaign targets primarily the general public but it is also designed for patients and patient representatives, as well as politicians, public authorities, policy-makers, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases. For more information click here or follow their Twitter and Facebook pages.


World PI Week
IPOPI would be grateful for any support to the important work for primary immunodeficiencies.

Read all

Executive Director: Johan Prevot
Email: johan@ipopi.org
Tel/Fax: +351 21 407 5720
UK office
Firside Main Road Downderry
Cornwall PL11 3LE
United Kingdom

Tel: +44 1503 250 668
Fax: +44 1503 250 961
E-mail: info@ipopi.org
IPOPI is a charity registered in the UK.
Registration No. 1058005