May 13, 2014

IPOPI Patient Needs and Outlooks Study Publication

IPOPI is pleased to announce the publication of its survey manuscript looking at Improving current immunoglobulin therapy for patients with primary immunodeficiency: quality of life and views on treatment. The purpose of this study was to gain an understanding of how existing PID therapies affect patient lives and to identify desired improvements to immunoglobulin treatments.  A total of 300 responded to the survey (72% patients with PID and 28% caregivers) from across 21 countries. The results highlight the importance of providing access to different treatment options and modes of administration to ensure individual patient needs are best met. The manuscript can be found here.

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Contact
Executive Director: Johan Prevot
Email: johan@ipopi.org
Tel/Fax: +351 21 407 5720
UK office
Firside Main Road Downderry
Cornwall PL11 3LE
United Kingdom

Tel: +44 1503 250 668
Fax: +44 1503 250 961
E-mail: info@ipopi.org
IPOPI is a charity registered in the UK.
Registration No. 1058005