Dec 5, 2014

IPOPI 5th PID Forum at the European Parliament

IPOPI held yesterday its 5th PID Forum at the European Parliament in Brussels (Belgium), which was co-chaired by Dr Cristian Busoi MEP and Dr Boreslaw Piecha MEP. This edition focused on the need for a comprehensive framework for care and policy for PIDs.

Patient organisations, stakeholder groups, European and international organisations and industry representatives gathered with Members of the European Parliament to discuss how to involve PID patients in the development of policies that would have an impact on their lives: from SCID newborn screening, to the Blood Directive, European Reference Networks and Health Technology Assessments (HTAs).
More information on the Forum and the presentations very soon in the IPOPI Winter e-News!

World PI Week
IPOPI would be grateful for any support to the important work for primary immunodeficiencies.

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Executive Director: Johan Prevot
Tel/Fax: +351 21 407 5720
UK office
Firside Main Road Downderry
Cornwall PL11 3LE
United Kingdom

Tel: +44 1503 250 668
Fax: +44 1503 250 961
IPOPI is a charity registered in the UK.
Registration No. 1058005