Mar 2, 2015

IPOPI patient testimonials videos are here!

IPOPI is releasing today its first patient testimonial video. Jose Drabwell, Common Variable Immunodeficiency (CVID) patient and IPOPI President is the first one up with a very positive message.

During this week a total of 5 videos devoted to the benefits of early diagnosis and treatment will be published on IPOPI’s YouTube page and also on Facebook and Twitter. Stay tuned for testimonials from a Chronic Granulomatous Disease (CGD) patient, from a mother of an X-Linked Agammaglobulinemia (XLA) patient and more.
In the upcoming weeks more videos will follow on the topics of individualized treatment and burden of treatment.

The IPOPI patient testimonials videos were supported by a Grant from Baxter, rights and ownership of all films own by IPOPI.

World PI Week
IPOPI would be grateful for any support to the important work for primary immunodeficiencies.

Read all

Executive Director: Johan Prevot
Tel/Fax: +351 21 407 5720
UK office
Firside Main Road Downderry
Cornwall PL11 3LE
United Kingdom

Tel: +44 1503 250 668
Fax: +44 1503 250 961
IPOPI is a charity registered in the UK.
Registration No. 1058005