Mar 24, 2015

New SCID website page

IPOPI is proud to announce the launch of a new website section dedicated to newborn screening for Severe Combined Immunodeficiencies (NBS for SCID). This new page compiles IPOPI advocacy activities for SCID NBS, the latest news on SCID newborn screening and our NMOs’ campaigns to ensure that this paediatric emergency is included in the national newborn screening panels throughout the world.

For the first time, a map collects graphically information on the status of newborn screening in different countries in the different continents. You just need to select a country and information will be displayed regarding the existence of any activity regarding SCID newborn screening at national or regional level, a link for further information as well as information on whether there is any screening for rare diseases in that country available.

This new website page also provides information on IPOPI European and national campaigns on SCID newborn screening. Member organisations’ news are also portrayed in the website, so if you are leading a campaign in your country or region, please let us know!
This website can only be possible if you contribute! So if you would like to share any update with us, please inform Leire.

World PI Week
IPOPI would be grateful for any support to the important work for primary immunodeficiencies.

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Executive Director: Johan Prevot
Tel/Fax: +351 21 407 5720
UK office
Firside Main Road Downderry
Cornwall PL11 3LE
United Kingdom

Tel: +44 1503 250 668
Fax: +44 1503 250 961
IPOPI is a charity registered in the UK.
Registration No. 1058005