Jul 9, 2015

The Value of One Patient Organisation per Country

PLUS, the Platform of Plasma Protein Users, which represents organisations of patients living with rare plasma related disorders and rare bleeding disorders, recently issued a position statement on the value of one national patient organisation per country. The statement highlights that only by having a single recognised patient organisation that channels the views of patients with decision-makers, payers and other stakeholders, can national patient groups effectively and efficiently represent their patient community in a consistent strategic approach. To access the PLUS position statement click here.

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Executive Director: Johan Prevot
Email: johan@ipopi.org
Tel/Fax: +351 21 407 5720
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