Mar 20, 2011

Booklets on 6 primary immunodeficiencies

Thanks to a generous sponsorship from CSL Behring and great support from the Immune Deficiency Foundation (IDF) USA it has been possible for IPOPI to produce booklets with descriptions of 6 different immunodeficiencies:
  • X-Linked agammaglobulinemia
  • Chronic Granulomatous Disease
  • Hyper IgM Syndrome
  • Severe Combined Immunodeficiency
  • Wiscott Aldrich Syndrome
  • Common Variable Immunodeficiency.

This is the first set of information, which IPOPI hope to be able to expand to more languages and more descriptions of immunodeficiencies.

All these texts are based on information from the Immune Deficiency Foundation’s “Patient and Family Handbook on Primary Immunodeficiencies, 4th edition.

National Member Organisations can request the booklets free of charge (subject to stock availabililty) on request from: info@ipopi.org

For large deliveries a contribution to cover shipping expenses may be requested. The booklets have the same contents in English, French, German, Spanish and Portuguese and Russian. Click your preferred language to see the booklets:

English

Arabic

Estonian

French

German

Greek

Portuguese

Romanian

Russian

Spanish

 



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Contact
Executive Director: Johan Prevot
Email: johan@ipopi.org
Tel/Fax: +351 21 407 5720
UK office
Firside Main Road Downderry
Cornwall PL11 3LE
United Kingdom

Tel: +44 1503 250 668
Fax: +44 1503 250 961
E-mail: info@ipopi.org
IPOPI is a charity registered in the UK.
Registration No. 1058005