December 2009

Dec 17, 2009

From the Chairperson’s Desk...

The past few months have again seen exciting times in the life of your global umbrella organisation!

Our membership continues to grow as you will see elsewhere in this e-news.

Dec 17, 2009

The Global Leaders Meeting

IPOPI hosted a group of leading international experts in the fields of diagnosis and treatment of primary immunodeficiencies in London over the weekend of October 31 2009.

Dec 17, 2009

Australian Family Weekend Sea World Resort Gold Coast Queensland

The inaugural IDFA Family weekend took place on the 11 – 13th September 2009. 21 families (almost 100 people) with school aged PID children came together to the Sea World Resort on the Gold Coast Queensland to meet for the first time as a family PID group.

Dec 17, 2009

Swine Flu (H1N1)

We know that many of you are concerned about the 'Swine flu' or H1-N1: at the time of writing there is more than a little confusion around the world about who to vaccinate and how many injections are needed.

Dec 17, 2009

IPOPI NMO Support Programme – a reminder

The IPOPI NMO Support Programme has been created to assist mainly new and emerging NMOs to become effective organisations helping with primary immunodeficiencies throughout the world.

Dec 17, 2009

See you in Istanbul?

Yes folks – it is that time again!! IPOPI meets in Istanbul between Wednesday October 6 (starting after lunch) and finishing late on Saturday October 9th.

Dec 17, 2009

New IPOPI Associate Members

The Board has approved new Associate members from patient organisations in Austria, Brazil, Colombia, Greece, Japan and Mexico with an application from Belgium already in the line-up for the next Board meeting. So that is three from Latin America, three from Europe and one from Japan. We congratulate them all on reaching this stage in their development as ambassadors for people with primary immunodeficiencies!

Dec 17, 2009

First Meeting In Latin American of the International Patient Organization for Primary Immunodeficiencies (IPOPI) Report

Roberta, as IPOPI board member, spoke a few words welcoming the participants to the First Meeting in Latin American of the International Patient Organization for Primary Immunodeficiencies (IPOPI), and introduced Jose to the attendance.

Dec 17, 2009

The Luciano Vassalli Award

Instituted by The International Patient Organisation for Primary Immunodeficiency - IPOPI.