Links

Sites of interest

World PI Week website

www.worldpiweek.org

Current Recalls and Market Withdrawls of fractionated blood and plasma products

www.fda.gov/cber/recalls.htm

Care for Rare Foundation www.care-for-rare.org

The SCID homepage

www.scid.net/

NORD Home Page

www.rarediseases.org/

CBER-Center for Biologics Evaluation and Research

www.fda.gov/AboutFDA/CentersOffices/CBER/default.htm/

The Genome Database

http://www.ncbi.nlm.nih.gov/sites/genome

The Gene Map of the human Genome

www.ncbi.nlm.nih.gov/SCIENCE96

Centers for Disease Control and Prevention Home Page

www.cdc.gov/

National Institutes of Health (NIH)

www.nih.gov/

The CGD Society, UK

www.cgdsociety.org/

Centre for Immunodeficiency

www.centreforimmunodeficiency.com

XLP Research Trust

www.xlpresearchtrust.org

Health Eu Portal

http://ec.europa.eu/health-eu/

FIND-ID
Kompetenznetzwerk für Angeborene Immundefekte

www.find-id.net

The Immune Deficiency Foundation

www.primaryimmune.org

The Working Group Pediatric Immunology

www.kinderimmunologie.de

Learn About Plasma Donation

http://www.donatingplasma.org/why

Jeffrey Modell Foundation

www.info4pi.org/

The Immune Deficiency Foundation (IDF)

www.primaryimmune.org

XLP awareness

www.xlpresearchtrust.org

European Foundation for the Care of Newborn Infants www.efcni.org


Information about the Immune System

National institute of allergy and infectious diseases

www.niaid.nih.gov/final/immun/immun.htm

BioMi 2900/2911 Animation Page

http://instruct1.cit.cornell.edu/Courses/biomi290/

Paul-Ehrlich-Institut

www.pei.de



Societies

AAAAI Web Site

www.aaaai.org

British Society for Immunology

http://immunology.org/

www.clinimmsoc.org

www.clinimmsoc.org

Primary Immunodeficiency Network

pin.info4pi.org

American Society of Gene & Cell Therapy

Inherited Immune Deficiences Summary



IPOPI Relations To Other International Organisations

European Organisation for Rare Diseases

EURORDIS

Member

www.eurordis.org/

International Union of Immunological Societies

IUIS

Contact

www.iuisonline.org/

European Federation of Immunological Societies

EFIS

Contact

www.efis.org/

European Patients´ Forum

EPF

Member

www.europeanpatientsforum.org/

European Society for Immunodeficiencies

ESID

Co-operation

www.esid.org/

International Nursing Group for Immunodeficiencies

INGID

Co-operation

www.ingid.org/

World Health Organisation

WHO

Contact

www.who.int/

Plasma Protein Therapeutics Association

PPTA

Co-operation

www.pptaglobal.org/

The International Plasma Fractionators Association

IPFA

Co-operation

www.sanquin.nl/



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Contact
Executive Director: Johan Prevot
Email: johan@ipopi.org
Tel/Fax: +351 21 407 5720
UK office
Firside Main Road Downderry
Cornwall PL11 3LE
United Kingdom

Tel: +44 1503 250 668
Fax: +44 1503 250 961
E-mail: info@ipopi.org
IPOPI is a charity registered in the UK.
Registration No. 1058005