National Member Organisations of IPOPI

The following is a list of Member Organisations and International Support Groups.

Argentina Asociación Ayuda al Paciente con Inmunodeficiencia Primaria (AAPIDP) Roberta Pena
Gallo 1553, 4 A
Capital Federal Bs. As
Argentina
Codigo Postal 1425
+54 0115 778 2570
+54 9 11 4415 4415
Roberta@ipopi.org
info@aapidp.com.ar
www.aapidp.com.ar
Australia The Immune Deficiency Foundation of Australia
(IDFA)

Christine Jeffery
Executive Officer IDFA
Address: PO Box 969 Penrith NSW 2751
5 North Circle Blaxland NSW 2774
Office: 1800 100 198
Mobile: 0409 945 114
Email: christine.jeffery@idfa.org.au / info@idfa.org.au
Web: http://www.idfa.org.au

Austria Österreichische Selbsthilfegruppe primärer Immum Defekte (ÖSPID) Karin Modl
Eichkogelstraße 7
3004 Riederberg
Österreich
0664/1830169
Fax 02271/26146
modl.karin@gmx.at
www.oespid.at
Belarus The republican public organisation of patients (parents) with primary immunodeficiency "Save immunity" Lesnoy village
Minsk district
Belarus 223052
+375 017 2654 222
Andron116@yandex.ru
Belgium Belgian Organisation for Patients with Primary Immunodeficiencies (BOPPI) Sentier du Point d'Arrêt, 2
7800 Lanquesaint
Belgium
valain@boppi.be
www.boppi.be
Brazil Assossiação Brasileira de Imunodeficiência (ABRI) Tatiana C Lawrence: President
Rua Santa Justina, 222
CEP 04545041
+55 11 81967837
tlawrence@abri.com.br
info@abri.com.br
www.abri.com.br
Bosnia
& Herzegovina

Udruženje za podršku osobama sa Primarnom Imunodeficijencijom – Udruženje (POPID) Dzenita Subasic: Founder
Sarajevo, Trg Heroja, 30, Bosnia & Harzegovina
+387-66-910 677
dzenita.subasic@sos-ds.ba

Bulgaria

Association of People with Congenital Immunodeficiency Stoil Lazarov: President
stoil_lazarov@abv.bg

Dr. Nedelcho Hadjinikolov: Vice-President and contact person
nhadjinikolov@abv.bg
3, Javoretz str., vh. B 1164, Sofia, Bulgaria

+359 888 97 87 22

Canada Canadian Immunodeficiencies Patient Organisation
(CIPO)

Libby Tough, Acting President
CIPO National
8516 – 18 Avenue S.W.
Edmonton, AB
T6X 0R7
Canada
+1 877 262 2476 (CIPO)
Info@cipo.ca
www.cipo.ca

Chile Corporación Chilena de ayuda para los Pacientes con Inmuno Deficiencias Primarias (Vida por La Vida)
Chilean Association for Support of Patients with Primary Inmunodeficiencies (Life for Life)
Roberto Velasquez Fernandez: President
Callao 3380. Las Conds, Santiago, Chile
562.2337932
Fax 562.2342043
vidaporlavida@gmail.com
Colombia Fundación "Diana García de Olarte" para las Inmunodeficiencias Primarias (FIP) Carolyn Álvarez: Secretary
Carrera 43C #9-21 Ed. Modulor
Medellin
Colombia (South America)
(57) 4-266-4534
Fax (57) 4-219-1065
Mobile: (57) 314-864-6956
fundacionfip@gmail.com
www.fundacionfip.org.co
Cyprus Cyprus Primary Association and Friends Maria G. Charalambous
Kalli Sakka 5
Parisinos
Strovolos
Nicosia 2066
Cyprus
0035 722 453630
Fax 0035 722 453 631
Maria.g.charalambous@cyta.com.cy
Denmark Immun Defekt Foreningen
(IDF)
Annette Vestberg Lund
Tycho Brahes Allé 25
Skovby
DK-8464 Galten
Denmark
+45 20 66 01 65
bo@idf.dk
www.idf.dk
Egypt (Associate NMO)

The Society of Nada for the support of Egyptian Patients with Primary Immunodeficiency

Shereen Reda, Professor of Pediatrics, Faculty of Medicine, Ain Shams University
Nada Society 
Room 5, ground floor of Children’s Hospital at Faculty of Medicine- Ain Shams University, Abbassya, Cairo 1156, Egypt
+202 24187440
+201222196159
shereen.m.reda@gmail.com
shereenreda@med.asu.edu.eg

Estonia Estonian Patient Society for Primary Immunodeficiencies Juhan Liiva
juhanliiva@gmail.com
Finland Immunipuutospotilaiden yhdistys r.y.

Jari Kervinen: Chairman
Läpisuontie 12
02780 Espoo
FINLAND
puheenjohtaja@imppu.fi
www.imppu.fi

France Immuno-Deficience Primitive: Recherche, Information, Soutien
(IRIS)

Estelle Pointaux: Chairperson
Virginie Grosjean: Executive Director
Association IRIS
195 avenue Victor Hugo
54200 Toul
France
Office: +33 3 29 83 48 34
Mobile: +33 6 43 78 50 34
info@associationiris.org
www.associationiris.org

Germany Deutsche Selbsthilfe Angeborene Immundefekte e. V.
(DSAI)

 

Gabriele Gruendl
Hochschatzen 5
D-83 530 Schnaitsee
Germany
+49 08074 8164
Gabriele.gruendl@dsai.de
info@dsai.de
www.dsai.de
Greece Association of Greek Friends for Paediatric Immunology - Primary Immunodeficiencies (APMONIA) Christos Manolakakis
14 Romanou Melodou Str.
11471 Athens
Greece
0030 210 6532683
manolakakisch@windowslive.com
www.paed-anosia.gr
Hong Kong (Associate NMO) Primary Immunodeficiency League Gary But: President
Geoffrey Yu: Vice-President
Dept. of pediatrics & adolescent medicine
Room 115, New Clinical Building, Queen Mary Hospital, Pokfulam, Hong Kong
Tel (G. Yu): 0085 294 088 983 
Tel (G. But): 0085 292 162 185
geoffreyyu93@gmail.com but_3@gmail.com
Hungary HOPI (Hungarian Organization for Patients with Immunodeficiencies)

Monika Apati Nagy: President
Zsuzsa Horváth: Vice-President and contact person
Nagyerdei Krt.
98. 4032 Debrecan
Hungary
hzsu86@gmail.com

Iceland Lind - Icelandic Immune Deficiency Foundation Gudlaug Bjarnadottir
Spitalastigur 8
IS-101 Reykjavik
+354 698 88 06
gmb@bhs.is
Onaemisgalli@onaemisgallar.is
India

 

Indian Patients Society for Primary Immunodeficiency
(IPSPI)

Ruby Chawla: Predident
PLOT NO. 36, SWARNAPURI,PATIA,C.S.PUR,
BHUBANESWAR(ORISSA)-751075
Tel/Fax: 0674-2726402 (O)
+91 98611 85656 (M)
+91 94370 47888
+91 90404 07188 (M)
rubbychawla@ipspiindia.org
rubbyipspi@rediffmail.com
www.ipspiindia.org

Iran Iranian Primary Immunodeficiency Association
(IPIA)
Nima Rezaei, MD, PhD
rezaei_nima@yahoo.com
Asghar Aghamohammadi, MD
aghamohammadi@tums.ac.ir
Research Center for Immunodeficiencies
Children's Medical Center
Dr Gharib St, Keshavarz Blvd
Tehran 14194, Iran
+9821-6692-9234
+9821-6692-9235 (F)
Ireland Irish Primary Immunodeficiency Organisation (IPIA)

Alison Coffey: Chairperson
alisoncoffey@eircom.net
Martha Gouldsbury: Secretary
ipiasecretary@gmail.com

Italy Associazione Immunodeficienze Primitive
(AIP)

Andrea Gressani
Associazione Imunodeficienze Primitive onlus
Via Galvani, 18
25123 Brescia - Italy
+39-030-3386557 
info@aip-it.org
www.aip-it.org

Japan PID Tsubasa-no-Kai

Kohsuke IMAI, M.D., Ph.D.
Associate Professor
Department of Community Pediatrics, Perinatal and Maternal Medicine
Tokyo Medical and Dental University
1-5-45, Yushima, Bunkyo-ku, Tokyo
+81-3-5803-4082
Fax +81-3-5803-0378
kimai.ped@tmd.ac.jp
n
po-pidtsubasa.org

Malaysia Malaysia Patient Organization of Primary Immunodeficiencies (MyPOPI)
Mr. Bruce Lim Wee Diong: President 
Contact person: Dr Adli Ali
+603-91455394/7888
+6012-3227442
adli.ali@ppukm.ukm.edu.my
Mexico Fundacion Mexicana para Ninas y Ninos con Immunodeficiencias Primarias, A.C.
(FUMENIP)
Eva Margarita Solorzano
Vialidad de la Barranca S/N
Manzana 2 Lote 1
Colonia Valle de las Palmas
Estado de Mexico
C.P. 52 787
Mexico
+52 55 5546 4130
emarsol@gmail.com
www.fumenip.org.mx
Morocco Association Hajar de Soutien aux patients atteints de deficits immunitaires Primitfs Bousfiha Ahmed Aziz
Number 60, Street 2
District Miamer
California
Casablanca
+212 61 431062
Aabousfiha@menara.ma
http://hajar-maroc.org/
The Netherlands Stichting voor Afweerstoornissen Kees Wass: Secretary 
Burg Krygsmangeerde 27
4942 AV Raamsdonksveer
The Netherlands
+31 162 517 210
k.waas@stichtingvoorafweerstoornissen.nl
www.stichtingvoorafweerstoornissen.nl
New Zealand Immunodeficiency Foundation – New Zealand
(IDFNZ)
IDFNZ
PO Box 75-076, Manurewa, Manukau 2243
Auckland
New Zealand
+64 9 528 6212
info@idfnz.org.nz
www.idfnz.org.nz
Norway Norwegian Immunodeficiency Organisation Eva Brox
Brunholmgt. 3A
N-6004 Aalesund
Norway
+47 70 12 83 88
Evabrox@online.no
Peru Asociacion Peruana de Ayuda al Inmunodeficiente Primario (ASPAIP) Luciana Salcedo: President San Juan de Miraflores,
Urb Valle SaronCal.
las Lilas 584,
LimaPeru 00511
46126548
Poland Association for Patients with Primary Immunodeficiencies "Immunoprotect"

Adrian Górecki: President
Stowarzyszenie IMMUNOPROTECT
ul. Okręgowa
64 93-367 Łódź
POLAND
biuro@immunoprotect.pl
www.immunoprotect.pl

Portugal Associação Portuguesa de Doentes com Imunodeficiência Primária
(APDIP)
Maria João Mousinho: President
+351 966 907 528
www.apdip.pt
geral@apdip.pt
mjmousinho@gmail.com
Romania Romanian Association for Patients with Primary Immunodeficiencies (ARPID) Matei Basarab Street, no.10 A, building 37, entrance B, apartment 6
Timisoara, Timis County
Romania
general_praxis@yahoo.com
Baldea Artemiza – President 
0040 743 078 143
Fax: 0040 354 418 871
Neacsu Stefania Larisa – Secretary
Posea Ana-Maria – Vice-President 
0040 756 060 718
arpid_life@yahoo.com
http://arpid.ro/
Russia Association for primary immune deficient patients

Anton Emelin
Trifonovskaya street, bld 49, app. 41
129272, Moscow
Russia
+7-906-793-83-40
Email: anton_emelin@hotmail.com

Serbia Supporting Persons with Primary ImmunoDeficiencies
(SPwPID/POsPID)
Dragana Koruga
O. Zapanica 12/38
SRB -11070 New Belgrade
+381 11 2602030
dragana.koruga@pospid.org
www.pospid.org.rs
Slovenia Slovenian Society for immune disorders

Tadej Avcin: President
Bohoričeva 20
SI-1000 Ljubljana
Slovenia
www.imuno.si
+38615229277
tadej.avcin@kclj.si

South Africa Primary Immunodeficiency Network of South Africa
(PINSA)
Joy Rosario: Vice chair
P.O. Box 95532
Waterkloof 0181
Pretoria
South Africa
+27 082 365 4663
pinsahelp@mweb.co.za
www.pinsa.org.za
Spain Asociación española de deficits immunitarios primarios
(AEDIP)
Carlos Jimenez: President
Avda. Pompeu i Fabra, 10-1-E
08024 Barcelona
aedip@aedip.com
www.aedip.com
Sweden Primaer Immunbrist Organisationen
(PIO)

Stefan Nordeman: Chair
Anneli Larsson: Executive Director
Mellringevaegen 120 B
S-703 53 Oerebrro
Sweden
+46 19 673 21 24
stefan.nordeman@pio.nu
www.pio.nu

Switzerland Schweizerische Vereinigung für Angeborene Immundefekte
(SVAI)
Sergio Vassalli
Postfach 1089
Baslerstr. 141
CH-8048 Zürich
Switzerland
+41 44 4353 800 (Day time)
+41 43 8171 717 (home)
+41 44 4353 808 (fax)
sergio.vassalli@svai.ch
sandra.vassalli@svai.ch
info@svai.ch
www.svai.ch
Thailand (Associate NMO) ThaiPOPI

Contact person: Dr. Narissara Suratannon
mayzped@gmail.com
+662564951
Mobile: +66812950190

Turkey Immun Yetmezlik Dernegi (IMYED) Selcan KAYA
Unalan Mah. Ulgen sok. No:14/1
Uskudar / İstanbul
0216 523 60 60 /145
Mobile: 0535 736 81 33
info@imyed.org.tr
selcankaya@yahoo.com
www.imyed.org.tr
Uganda (Associate NMO) UPPID Winnie Namara 
winmuk_nam@yahoo.com
United Kingdom Primary Immunodeficiency UK (PID UK)

Contact: Susan Walsh, Director

0800 097 8986

 

United States of America Immune Deficiency Foundation
(IDF)
Marcia Boyle
40 West Chesapeake Avenue (Suite 308)
Towson
MD 21204
USA
+1 800 296 4433
Idf@primaryimmune.org
www.primaryimmune.org
Uruguay
Asociación Uruguaya de Pacientes con Inmunodeficiencias Primarias (AUPIDP)

María Isabel Sánchez: President
Hudson 4591 bis, Montevideo, Uruguay
Mobile: 598297128398

Venezuela Inmunodeficiencias Primarias Venezuela (IDP Venezuela) Urb. Campo Claro.
Terrazas de Sol. Casa 46.
5151, Mérida
Venezuela
Chairman: César Pérez Maldonado
+58 274 2403531
Mobile: +58 414 1793041
idpvenezuela@gmail.com

 

Other Partner Organisations



ASID African Society for Immunodeficiences
CIS Clinical Immunology Society
ESID European Society for Immunodefiencies
INGID International Nursing Group for Immunodeficiencies
JMF Jeffrey Modell Foundation
LASID Latin American Society for Immunodeficiencies
PLUS Platform of Plasma Protein Users


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Contact
Executive Director: Johan Prevot
Email: johan@ipopi.org
Tel/Fax: +351 21 407 5720
UK office
Firside Main Road Downderry
Cornwall PL11 3LE
United Kingdom

Tel: +44 1503 250 668
Fax: +44 1503 250 961
E-mail: info@ipopi.org
IPOPI is a charity registered in the UK.
Registration No. 1058005