National Member Organisations of IPOPI

The following is a list of Member Organisations and International Support Groups.

Argentina	Asociación Ayuda al Paciente con Inmunodeficiencia Primaria (AAPIDP)	Roberta Pena Gallo 1553, 4 A Capital Federal Bs. As Argentina Codigo Postal 1425 +54 0115 778 2570 +54 9 11 4415 4415 Roberta@ipopi.org info@aapidp.com.ar www.aapidp.com.ar
Australia	The Immune Deficiency Foundation of Australia (IDFA)	Christine Jeffery Executive Officer IDFA Address: PO Box 969 Penrith NSW 2751 5 North Circle Blaxland NSW 2774 Office: 1800 100 198 Home: (02) 47 393 988 Mobile: 0417 240 465 Email: harmonie@tpg.com.au Web: http://www.idfaustralia.org
Austria	Österreichische Selbsthilfegruppe primärer Immum Defekte (ÖSPID)	Karin Modl Eichkogelstraße 7 3004 Riederberg Österreich 0664/1830169 Fax 02271/26146 modl.karin@gmx.at www.oespid.at
Belarus	The republican public organisation of patients (parents) with primary immunodeficiency "Save immunity"	Lesnoy village Minsk district Belarus 223052 +375 017 2654 222 Andron116@yandex.ru
Belgium	Belgian Organisation for Patients with Primary Immunodeficiencies (BOPPI)	Valérie van Muylem: President Sentier du Point d'Arrêt, 2 7800 Lanquesaint Belgium valain@boppi.be www.boppi.be
Brazil	Assossiação Brasileira de Imunodeficiência (ABRI)	Tatiana C Lawrence: President Rua Santa Justina, 222 CEP 04545041 +55 11 81967837 tlawrence@abri.com.br info@abri.com.br www.abri.com.br
Bosnia & Herzegovina (Associate NMO)	Udruženje za podršku osobama sa Primarnom Imunodeficijencijom – Udruženje (POPID)	Dzenita Subasic: Founder Sarajevo, Trg Heroja, 30, Bosnia & Harzegovina +387-66-910 677 dzenita.subasic@sos-ds.ba
Bulgaria (Associate NMO)	Association of People with Congenital Immunodeficiency	Stoil Lazarov stoil_lazarov@abv.bg
Canada	Canadian Immunodeficiencies Patient Organisation (CIPO)	Micheal Whellan: President CIPO Head Office 362 Concession Road 12, RR # 2 Hastings, Ontario, K0L 1Y0 Canada +1 877 262 2476 (CIPO) Info@cipo.ca www.cipo.ca
Chile	Corporación Chilena de ayuda para los Pacientes con Inmuno Deficiencias Primarias (Vida por La Vida) Chilean Association for Support of Patients with Primary Inmunodeficiencies (Life for Life)	Mr. Roberto Velasquez Fernandez: President Callao 3380. Las Conds, Santiago, Chile 562.2337932 Fax 562.2342043 vidaporlavida@gmail.com
Colombia	Fundación "Diana García de Olarte" para las Inmunodeficiencias Primarias (FIP)	Carolyn Álvarez: Secretary Carrera 43C #9-21 Ed. Modulor Medellin Colombia (South America) (57) 4-266-4534 Fax (57) 4-219-1065 Mobile: (57) 314-864-6956 fundacionfip@gmail.com www.fundacionfip.org.co
Cyprus	Cyprus Primary Association and Friends	Maria G. Charalambous Kalli Sakka 5 Parisinos Strovolos Nicosia 2066 Cyprus 0035 722 453630 Fax 0035 722 453 631 Maria.g.charalambous@cyta.com.cy
Denmark	Immun Defekt Foreningen (IDF)	Mrs. Annette Vestberg Lund Tycho Brahes Allé 25 Skovby DK-8464 Galten Denmark +45 20 66 01 65 Information@idf.dk www.idf.dk
Estonia	Estonian Patient Society for Primary Immunodeficiencies	Juhan Liiva juhanliiva@gmail.com
Finland	Immunipuutospotilaiden yhdistys r.y.	Immuunipuutospotilaiden yhdistys ry Jari Kervinen: Chairman Läpisuontie 12 02780 Espoo FINLAND puheenjohtaja@imppu.fi www.imppu.fi
France	Immuno-Deficience Primitive: Recherche, Information, Soutien (IRIS)	Guillaume Nicolas Association IRIS BP 40072 55102 Verdun Cedex 03 29 83 48 34 P. 06 43 78 50 34 info@associationiris.org www.associationiris.org
Germany	Deutsche Selbsthilfe Angeborene Immundefekte e. V. (DSAI)	Mrs. Gabriele Gruendl Hochschatzen 5 D-83 530 Schnaitsee Germany +49 08074 8164 Gabriele.gruendl@dsai.de info@dsai.de www.dsai.de
Greece	Association of Greek Friends for Paediatric Immunology - Primary Immunodeficiencies (APMONIA)	Christos Manolakakis 14 Romanou Melodou Str. 11471 Athens Greece 0030 210 6532683 manolakakisch@windowslive.com www.paed-anosia.gr
Hungary	HOPI (Hungarian Organization for Patients with Immunodeficiencies)	Monika Apati Nagy: President Zsuzsa Horváth: Vice-President and contact person Nagyerdei Krt. 98. 4032 Debrecan Hungary hzsu86@gmail.com
Iceland	Lind - Icelandic Immune Deficiency Foundation	Gudlaug Bjarnadottir Spitalastigur 8 IS-101 Reykjavik +354 698 88 06 gmb@bhs.is Onaemisgalli@onaemisgallar.is
India	Indian Patients Society for Primary Immunodeficiency (IPSPI)	Ruby Chawla PLOT NO. 36, SWARNAPURI,PATIA,C.S.PUR, BHUBANESWAR(ORISSA)-751075 Tel/Fax: 0674-2726402 (O) +91 98611 85656 (M) +91 94370 47888 +91 90404 07188 (M) rubbychawla@ipspiindia.org rubbyipspi@rediffmail.com www.ipspiindia.org
Iran	Iranian Primary Immunodeficiency Association (IPIA)	Asgar Aghamohammadi Immunology, Asthma and Allergy Research Institute Childrens´ Medical Center No. 62 Dr. Gharib St., Keshavarz Blvd Teheran 14194 Iran P.O.Box 14185-863 +98 21 693 58 55 Info@iranianpia.org www.iranianpia.org
Ireland	Irish Primary Immunodeficiency Organisation (IPIA)	Alison Coffey: Chairperson alisoncoffey@eircom.net Martha Gouldsbury: Secretary ipiasecretary@gmail.com
Italy	Associazione Immunodeficienze Primitive (AIP)	Andrea Gressani Via Medolo, 2 25123 Brescia (BR) Italy +39-030-3386557 info@aip-it.org www.aip-it.org
Japan	PID Tsubasa-no-Kai	Kohsuke IMAI, M.D., Ph.D. Associate Professor Department of Community Pediatrics, Perinatal and Maternal Medicine Tokyo Medical and Dental University 1-5-45, Yushima, Bunkyo-ku, Tokyo +81-3-5803-4082 Fax +81-3-5803-0378 kimai.ped@tmd.ac.jp n po-pidtsubasa.org
Mexico	Fundacion Mexicana para Ninas y Ninos con Immunodeficiencias Primarias, A.C. (FUMENIP)	Eva Margarita Solorzano Vialidad de la Barranca S/N Manzana 2 Lote 1 Colonia Valle de las Palmas Estado de Mexico C.P. 52 787 Mexico +52 55 5546 4130 emarsol@gmail.com www.fumenip.org.mx
Morocco	Association Hajar de Soutien aux patients atteints de deficits immunitaires Primitfs	Bousfiha Ahmed Aziz Number 60, Street 2 District Miamer California Casablanca +212 61 431062 Aabousfiha@menara.ma www.hajar.org.ma
The Netherlands	Stichting voor Afweerstoornissen	Kees Waas Burg Krygsmangeerde 27 4942 AV Raamsdonksveer The Netherlands +31 162 517 210 k.waas@stichtingvoorafweerstoornissen.nl www.stichtingvoorafweerstoornissen.nl
New Zealand	Immunodeficiency Foundation – New Zealand (IDFNZ)	IDFNZ PO Box 75-076, Manurewa, Manukau 2243 Auckland New Zealand +64 9 528 6212 info@idfnz.org.nz www.idfnz.org.nz
Norway	Norwegian Immunodeficiency Organisation	Eva Brox Brunholmgt. 3A N-6004 Aalesund Norway +47 70 12 83 88 Evabrox@online.no
Poland	Association for Patients with Primary Immunodeficiencies "Immunoprotect"	Adrian Górecki Stowarzyszenie IMMUNOPROTECT ul. Okręgowa 64 93-367 Łódź POLAND biuro@immunoprotect.pl www.immunoprotect.pl
Portugal	Associação Portuguesa de Doentes com Imunodeficiência Primária (APDIP)	Maria João Mousinho: President +351 966 907 528 www.apdip.pt geral@apdip.pt mjmousinho@gmail.com
Romania	Romanian Association for Patients with Primary Immunodeficiencies (ARPID)	Matei Basarab Street, no.10 A, building 37, entrance B, apartment 6 Timisoara, Timis County Romania general_praxis@yahoo.com Baldea Artemiza – Presedinte 0040 743 078 143 Fax: 0040 354 418 871 Neacsu Stefania Larisa – Secretary Posea Ana-Maria – Vice-Presedint 0040 756 060 718 arpid_life@yahoo.com http://arpid.ro/
Russia	Association for primary immune deficient patients	Anton Emelin Trifonovskaya street, bld 49, app. 41 129272, Moscow Russia +7-906-793-83-40 Email: anton_emelin@hotmail.com
Serbia	Supporting Persons with Primary ImmunoDeficiencies (SPwPID/POsPID)	Dragana Koruga O. Zapanica 12/38 SRB -11070 New Belgrade +381 11 2602030 dragana.koruga@pospid.org www.pospid.org
Slovenia	Slovenian Society for immune disorders (Associate NMO)	Tadej Avcin: President Bohoričeva 20 SI-1000 Ljubljana Slovenia www.imuno.si +38615229277 tadej.avcin@kclj.si
South Africa	Primary Immunodeficiency Network of South Africa (PINSA)	Janet Grab: Chairperson P.O. Box 95532 Waterkloof 0181 Pretoria South Africa +27 082 365 4663 pinsahelp@mweb.co.za www.pinsa.org.za
Spain	Asociation espanola de deficits immunitarios primarios (AEDIP)	Jose Gonzales Avda. Pompeu i Fabra, 10-1-E 08024 Barcelona aedip@aedip.com www.aedip.com
Sweden	Primaer Immunbrist Organisationen (PIO)	Maria Monfors: Chair Anneli Larsson: Executive Director Mellringevaegen 120 B S-703 53 Oerebrro Sweden +46 19 673 21 24 info@pio.nu www.pio.nu
Switzerland	Schweizerische Vereinigung für Angeborene Immundefekte (SVAI)	Sergio Vassalli Postfach 1089 Baslerstr. 141 CH-8048 Zürich Switzerland +41 44 4353 800 (Day time) +41 43 8171 717 (home) +41 44 4353 808 (fax) sergio.vassalli@svai.ch sandra.vassalli@svai.ch info@svai.ch www.svai.ch
Turkey	Immun Yetmezlik Dernegi (IMYED)	Selcan KAYA Unalan Mah. Ulgen sok. No:14/1 Uskudar / İstanbul 0216 523 60 60 /145 Mobile: 0535 736 81 33 info@imyed.org.tr selcankaya@yahoo.com www.imyed.org.tr
United Kingdom	New patient organisation in process	Interim IPOPI contact until new patient group is formed: David Watters david@ipopi.org
United States of America	Immune Deficiency Foundation (IDF)	Marcia Boyle 40 West Chesapeake Avenue (Suite 308) Towson MD 21204 USA +1 800 296 4433 Idf@primaryimmune.org www.primaryimmune.org
United States of America	Jeffrey Modell Foundation (JMF)	Vicki & Fred Modell 780 Third Avenue New York, New York 10017 USA +1 212 819 0200 info@jmfworld.org www.info4pi.org
Uruguay	Asociación Uruguaya de Pacientes con Inmunodeficiencias Primarias (AUPIDP)	María Isabel Sánchez: President Hudson 4591 bis, Montevideo, Uruguay Mobile: 598297128398
Venezuela	Inmunodeficiencias Primarias Venezuela (IDP Venezuela)	Urb. Campo Claro. Terrazas de Sol. Casa 46. 5151, Mérida Venezuela Chairman: César Pérez Maldonado +58 274 2403531 Mobile: +58 414 1793041 idpvenezuela@gmail.com

Print this page