NMO Key Documents

Key Documents

NMO Support Programme

English German Spanish French Portuguese Russian

Application Form

English

NMO toolbox

7 Easy Steps to Creating a National Association for Patients

English German Spanish French Portuguese Russian

National Members Organisations Skills Manual

English German Spanish French Portuguese Russian

Twinning Programme

Twinning will enable/facilitate a network of co-operation between national PID organisations around the world.

English German Spanish French Portuguese Russian

Awareness Campaign Toolkit

Broadcast Guidelines

Celebrity Guidelines

Government Guidelines

Family & School Guidelines

Media Guidelines

PID Leaflet IPOPI

Guidelines on Corporate Sponsorship

Medical Profession Guidelines

Government Outreach Guidelines

Checklist for an Effective Press Conference

Effective use of the Media

Government relations - Making your case effectively

Effective use of the Media

Advocacy & Media Training Toolkit

Checklist for an Effective Press Conference

Medical Profession Guidelines

Effective use of the Media

Government relations - Making your case effectively

Government Outreach Guidelines

Government Guidelines

Broadcast Guidelines

Media Guidelines

NMO Event Checklist


 

IPOPI Internal Policy Documents

 

Criteria for Accreditation as IPOPI National Member Organization

1. IPOPI Criteria for Recognition of a Country

  • IPOPI recognizes any country that is accepted by either the United Nations or World Health Organization.

2. Criteria for Recognizing Which National Group Should Represent a Country

  • Only one national Organization from a country will be entitled to vote
    • If two or more qualifying organizations exist in a country they need to negotiate IPOPI membership between themselves.
    • If such agreement cannot be reached, IPOPI Executive committee will assist in the determination of membership by recommending to the General Assembly granting of National Member Organization (NMO) status to the Organization which best satisfies its own criteria.
    • The only country (USA) which; for historical reasons; currently has two accredited NMOs shall retain that status. However this is an exceptional case and in future, NMO accreditation will only be granted to one organization per country.

3. Criteria for a National Group to Become an IPOPI Member Organization

  • The NMO must be the Organization which best represents the interests of people with primary immunodeficiency and their families in that country. This will generally be an organization led by and consisting primarily of people with primary immunodeficiency and their families. The Organization must be committed to the patients and patients must be involved in the Organization.
  • The goals and aims of an NMO must be similar to, and not in conflict with those of IPOPI.
  • The NMO must assume responsibilities regarding IPOPI, such as paying an assessment fees by due date to keep their voting status

4. Criteria for a National Group to Become an Associate NMO

  • Associate NMO status to be granted to countries whose membership or "board of management" is solely, or a majority of, doctors or other health professionals with no involvement by patients.
  • Associate NMO status may also be granted to countries where the organization is not yet ready to become a fully accredited NMO.
  • Associate NMO status may also be granted to countries that have met all other criteria for IPOPI NMO accreditation with the exception of being officially recognized as a country by either the United Nations or the World Health Organization.
  • Associate members will:
    • Receive all NMO benefits.
    • Have "observer", not voting status.
    • Pay reduced IPOPI assessment fees - 50% of full fees.
  • IPOPI shall, where possible, assist Associate NMOs to reach full NMO status within four years of becoming an Associate NMO.

To apply for national member organization status the following documents must be submitted to IPOPI headquarters:

  • Copy of your constitution/or Rules of Procedure.
  • List of Elected Officers.
  • All application documents should be submitted to IPOPI Headquarters 3 months prior to the next General Assembly in order to be considered for NMO Accreditation.
  • Complete applications that satisfy all the NMO Accreditation criteria will be submitted to the next IPOPI General Assembly for approval.
Charter 2006 Rules Of Procedure NMO Accreditation Criteria NMO Assessments


World PI Week
Donations
banner2
IPOPI would be grateful for any support to the important work for primary immunodeficiencies.

Read all

Contact
Executive Director: Johan Prevot
Email: johan@ipopi.org
Tel/Fax: +351 21 407 5720
UK office
Firside Main Road Downderry
Cornwall PL11 3LE
United Kingdom

Tel: +44 1503 250 668
Fax: +44 1503 250 961
E-mail: info@ipopi.org
IPOPI is a charity registered in the UK.
Registration No. 1058005