Programme-October 2010

XIth Meeting of International Patient Organization For Primary Immunodeficiency (IPOPI) 2010, Istanbul

Istanbul Exhibition and Convention Centre Dolmabahce A

Wednesday, Oct. 6

Time

Agenda

Moderator

Room

09.00 – 12.00

Board meeting

TBD

12.00 – 13.00

Lunch

 

 

13.00 – 14.00

Welcome to IPOPI biennial 2010 : José Drabwell (Chair)
Welcome to Turkey : Murat Gulersen (Turkish representative)
Luciano Vassalli award : Sven Fandrup ( Vice chair)
Remembrance ceremony : Stephen Baxter

David Watters (ED)

Dolmabahce A

14.00– 15.00

Presentations from

  1. France (l'IRIS) – Twinning with Morocco: Representive from IRIS
  2. Morocco: "How we managed to obtain free treatments for PID-patients", Aziz Bousfiha,
  3. Germany – The "Find ID" project: Steffen Ball, DSAI

Each 15 mins.

Stephen Baxter

Dolmabahce A

15.00 – 15.30

Coffee/tea break

 

 

15.30 – 16.15

Primary Immune Deficienccies and Rare Disorders
Johan Prevot, IPOPI

Sven Fandrup

Dolmabahce A

16.15 - 17.00

World Day of Immunology
Baxter Rep. and José Drabwell

David Watters

Dolmabahce A

17.15 – 18.00

Joint opening session

ESID, INGID, IPOPI

Anadolu auditorium

18.00 – 18.45

Keynote lecture
"How did our complex immune system evolve?"
Max Cooper

Amos Etzioni, ESID

Anadolu auditorium

18.45 – 19.45

Social event

ESID, INGID, IPOPI

Anadolu auditorium

20.00 – 23.00

Welcome reception

ESID, INGID, IPOPI

Adile Sultan Palace

 

Thursday, Oct. 7

Time

Agenda

Moderator

Room

09.00 – 10.30

IPOPI AGM and elections

Chair, ED

Dolmabahce A

10.30 – 11.00

Tea/coffee Break

 

 

11.00 – 11.45

Cord blood – Newborn screening, blood banks, SCT. The future possibility for cure?
Prof. Anders Fasth, Sweden

Teresa Espanol

Dolmabahce A

11.45 – 12.30

Hereditary angioedema (HAE)
Hilary Longhurst, UK

Teresa Espanol

Dolmabahce A

12.30 – 13.30

Lunch

 

 

13.30 – 14.15

The value and scientific use of the ESID PID Registry
Dr. Gerhard Kindle, Germany
Chairman working party Registry, ESID

Martine Pergent

Dolmabahce A

14.15 – 15.30

Lead in on: "What does early diagnosis and optimal treatment mean in a developing country?
Dr. Monica Esser, South Africa (20 min),
Dr. Surjit Singh, India (20 min)
Discussion (35 min)

Joy Rosario

Dolmabahce A

15.30 – 16.00

Report on the outcomes of Global Leaders Meeting
David Watters

José Drabwell

Dolmabahce A

16.00 – 16.30

Coffee/tea Break

 

 

16.30 – 17.15

What are the risks of vaccinations for PID patients? Will anti flu vaccinations be recommendable for primary immunodeficiencies?
Prof. Andrew Cant, UK
Joint session with INGID

Marcia Boyle

Dolmabahce A

17.15 – 17.30

Highlight from the day's ESID conference

Chair MAP

Dolmabahce A

Evening

IPOPI/Baxter dinner

 

TBC

 

Friday, Oct. 8

Time

Agenda

Moderator

Room

09.00 – 09.45

Transition from paediatric to adult care; experiences from Great Osmon and the Royal Free Hospital, London.
Claire Gilmour & Andrew Symes, UK
Joint session with INGID

Nina Berger Hustad

Dolmabahce B

09.45 - 1030

A Progressive treatment proposal, when you have no or limited access to immunoglobulin.
Prof. Albert Ferrugia, Senior Director, PPTA

Marcia Boyle

Dolmabahce A

10.30 – 11.00

Tea/coffee Break

 

 

11.00 – 12.00

"An invitation from your Minister for Health"
(Small "buzz-groups")
David Watters

José Drabwell

Dolmabahce A

12.00 – 13.00

The importance and benefits of data collection.

Example from IDF, USA.

To include discussion (Q&A)

Marcia Boyle

Sven Fandrup

Dolmabahce
A

13.00 – 13.45

Lunch

 

 

13.45 – 14.30

Panel discussion:
The necessity of data collection, not only for IPOPI but also for the NMOs. To include the results of the NMO Survey 2010.
Marcia Boyle, Sven Fandrup, Johan Prevot

David Watters

Dolmabahce A

14.30 – 15.30

Professional staff session

David Watters

"Levent"

14.30 – 15.30

New primary immunodeficiencies revealed by the investigation of paediatric infectious diseases.
Jacinta Bustamante, MD, FR

Teresa Espanol

Dolmabahce A

15.30– 16.00

Break

 

 

16.00 – 17.00

"Safety and availability of immunoglobulin outside Europe"; Collection and fractionation of local plasma
PPTA and IPFA

Sven Fandrup

Dolmabahce A

18.00 – 22.00

Dinner cruise on the Bosporus

ESID, INGID, IPOPI

 

 

Saturday, Oct. 9

Time

Agenda

Moderator

Room

09.00 – 10.30

Highlights from the ESID congress
Members of IPOPI MAP

Chair MAP

Dolmabahce A

10.30 – 11.00

Coffee/tea Break

 

 

11.00 – 1230

Feed back on meeting, David Watters, ED
IPOPI Closing remarks, José Drabwell, Chair

David Watters

Dolmabahce A

12.30 – 13.30

Lunch

 

 

13.30 – 14.30

IPOPI board meeting

Chair

TBD

14.30 – 15.30

Keynote closing lecture
"Crohn's is an immunodeficiency disease of macrophages"
Anthony Segal

Özden Sanal,
ESID

Anadolu auditorium

15.30 – 16.00

Closing ceremony

ESID, INGID, IPOPI

Anadolu auditorium

19.30 – 23.00

Gala dinner

 

Rahmi Koc Museum



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Contact
Executive Director: Johan Prevot
Email: johan@ipopi.org
Tel/Fax: +351 21 407 5720
UK office
Rocky Bottom, Trerieve
Downderry, PL11 3LY
United Kingdom

Tel: +44 1503 250 668
Fax: +44 1503 250 961
E-mail: info@ipopi.org
IPOPI is a charity registered in the UK.
Registration No. 1058005