IPOPI, the International Patient Organisation for Primary Immunodeficiencies, is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide

Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders.

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  • Dsai, Germany, central and regional leaders
  • PID patient's meeting in Bangkok
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Mar 6, 2017
The International Organisation for Primary Immunodeficiencies (IPOPI) is launching today a set of Recommendations for UK and EU policy makers to protect rare disease patients in the Brexit process.
Feb 28, 2017
IPOPI joins the rest of the primary immunodeficiency (PID) community in celebrating Rare Disease day today! This year's campaign focuses on the importance of increasing research in rare diseases.


Oct 21, 2016
IPOPI’s 2015 Review of Activities and Achievements is out and you can now read it online! We hope you will enjoy reading about one of the most important years for IPOPI yet.
Aug 29, 2016
IPOPI is pleased to announce the publication of the ‘PID Principles of Care Implementation Package’, a new key document designed specifically for our National Member Organisations (NMOs)

IPIC 2017

IPOPI Global Immunoglobulin list

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World PI Week

Biennial Meeting 2016