Booklets on 6 primary immunodeficiencies

Thanks to a generous sponsorship from CSL Behring and great support from the Immune Deficiency Foundation (IDF) USA it has been possible for IPOPI to produce booklets with descriptions of 6 different immunodeficiencies:

• X-Linked agammaglobulinemia
• Chronic Granulomatous Disease
• Hyper IgM Syndrome
• Severe Combined Immunodeficiency
• Wiscott Aldrich Syndrome
• Common Variable Immunodeficiency.

This is the first set of information, which IPOPI hope to be able to expand to more languages and more descriptions of immunodeficiencies.

All these texts are based on information from the Immune Deficiency Foundation’s “Patient and Family Handbook on Primary Immunodeficiencies”, 4th edition.

National Member Organisations can request the booklets free of charge. Patients, nurses and doctors can obtain the booklets on request from:

Executive Director David Watters, Firside, Main Road, Downderry, PL11 3LE, United Kingdom.

For larger deliveries a contribution to cover shipping expenses may be requested. The booklets have the same contents in English, French, German, Spanish and Portuguese and Russian. Click your preferred language to see the booklets:

English

• Chronic Granulomatous Disease
• Common Variable Immunodeficiency
• Hyper IgM Syndrome
• Severe Combined Immunodeficiency
• Wiskott-Aldrich Syndrome
• X-Linked Agammaglobulinemia

French

• Agammaglobulinémie Liée à l'X
• Déficits Immunitaire Commun Variable
• Granulomatose Septique Chronique
• Les Déficits Immunitaires Combinés Sévères
• Syndrome d'Hyper-IgM
• Syndrome de Wiskott-Aldrich

German

• Agammaglobulinämie
• Das Hyper-IgM-Syndrom
• Das Variable Immundefekt-Syndrom
• Das Wiskott-Aldrich-Syndrom
• Der Schwere Kombinierte Immunodefekt
• Die Chronische Granulomatose

Spanish

• Agammaglobulinemia Ligada Al Cromosoma X
• Enfermedad Granulomatosa Crónica
• Inmunodeficiencia Combinada Grave
• Inmunodeficiencia Común Variable
• Síndrome de HiperIgM
• Síndrome de Wiskott-Aldrich

Portuguese

• Agamaglobulinemia Ligada Ao Cromossoma X
• Doença Granulomatosa Crónica
• Imunodeficiência Combinada Grave
• Imunodeficiência Comun Variável
• Síndrome de Hiper-IgM
• Síndrome de Wiskott-Aldrich

Russian

• Хроническая гранулематозная болезнь
• Общая Вариабельная Иммунная Недостаточность
• Синдром Гипериммуно- Глобулинемии М
• Тяжелая Комбинированная Иммунная Недостаточность
• Синдром Вискотта- Олдрича
• X-Сцепленная Агаммаглобулинемия

Greek

• ΧΡΟΝΙΑ ΚΟΚΚΙΩΜΑΤΩΔΗΣ ΝΟΣΟΣ (ΧΚΝ)
• ΚΟΙΝΗ ΠΟΙΚΙΛΗ ΑΝΟΣΟΑΝΕΠΑΡΚΕΙΑ (ΚΠΑΑ)
• ΣΥΝΔΡΟΜΟ ΥΠΕΡ-IgM
• ΒΑΡΕΙΑ ΣΥΝΔΥΑΣΜΕΝΗ ΑΝΟΣΟΑΝΕΠΑΡΚΕΙΑ (ΒΣΑΑ)
• ΣΥΝΔΡΟΜΟ WISKOTT-ALDRICH
• ΦΥΛΟΣΥΝΔΕΤΗ ΑΓΑΜΜΑΣΦΑΙΡΙΝΑΙΜΙΑ (Χ-α-γ-σφαιριναιμία)