IPOPI - International Patient Organisation for Primary Immunodeficiencies IPOPI - International Patient Organisation for Primary Immunodeficiencies
 
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ESID/INGID/IPOPI Congress 2008
16th-19th October 2008 ‘s-Hertogenbosch, the Netherlands

Presentations

Welcome - Kees Waas ipv Geert-Jan van Moorsel

Welcome

Chairperson Report

The Importance of Collection and Dissemination of National & Global Statistics on Primary Immunodeficiency Diseases - Marcia Boyle President & Founder Immune Deficiency Foundation

The Importance of Collection and Dissemination of National and Global Statistics on Primary Immunodeficiency Diseases - Jeffrey Modell Foundation

Association for the Help of Patients with Primary Immune Deficiencies

UK Dept of Health Initiative - Helen Chapel, University of Oxford, Oxford Radcliffe Hospitals

Evidence-based use and prioritization of therapeutic Ig - Jordan Orange MD/PhD
Assistant Professor of Pediatrics, University of Pennsylvania School of Medicine,
Children’s Hospital of Philadelphia

How can NMOs work together on a daily basis? Experiences from the Nordic countries by Anneli Larsson, PIO, Sweden Sven Fandrup, IDF, Denmark

Welcome to IPSPI - Presented By Rubby Chawla, President-IPSPI

DSAI‘s Enlightenment and Public Relations Campaigns

Vaccines - Dr T. Espanol Immunology Unit University Hospital Vall d´ Hebron Barcelona

How to Develop Your NMO National Member Organisation - Stephen Baxter

Round Table with Industry

Fundraising in a small NMO IDF – Denmark, Sven Fandrup

How to prepare and conduct a Fundraising for your NMO

Working with National Regulators and Health Authorities - Albert Farrugia, Senior Director, Global Access, Plasma Protein Therapeutics Association

   
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