Living With Primary Immunodeficiencies

WHAT IS IPOPI?

International Patient Organization for Primary Immunodeficiencies

IPOPI is an international organization that was created in order to achieve worldwide improvement in the care and treatment of people with primary immunodeficiencies. Current members of IPOPI include over sixteen primary immune deficiency patient organizations in 20 countries: Australia, Canada, Denmark, Estonia, Finland, France,Germany, Ireland, India, Italy, Netherlands, New Zealand, Norway, Poland, Spain, Sweden, Switzerland, United Kingdom, United States and Yugoslavia.. Other developing organizations are in Austria, Belgum, Chile, Cyprus, Greece, Hungary, Iran, Kuwait, Lebanon, Mexico, South America, Zimbabwe.

HOW CAN IT HELP?

IPOPI strives to educate the families living with primary immune deficiencies, the medical sector, and the general public by providing newsletters, web sites, a searchable database, E-mail roster, Chat line and discussion groups.

IPOPI strives to be responsive on an international level to the issues of greatest concern to its members. These issues include:

Blood product safety
Improving patient diagnosis
Gene Therapy
Immunoglobulin therapy
Patient Organization development
Medical research information disbursement
Prospects from mapping the Human Genome

Telephone: +44 207 976 7640 Fax: +44 207 976 7641
E-mail: pimmune@dial.pipex.com
Web site: www. IPOPI.org



	Living With Primary Immunodeficiencies Section One WHAT HAPPENS AFTER THE DIAGNOSIS Section Two WHAT TO EXPECT AS YOUR CHILD GROWS OLDER Section Three ADULT ONSET Section Four IMPORTANT ELEMENTS FOR SUCCESSFUL COPING Section Five SUMMARY OF DO NOT'S WE SHOULD BE AWARE OF Section Six SUMMARY OF DO'S TO KEEP IN MIND Section Seven WHAT IS IPOPI and HOW CAN IT HELP? Section Eight HELPFUL PUBLICATIONS